Authors: Rita Baron-Faust,Jill Buyon
The Autoimmune Connection: Essential Information for Women on Diagnosis, Treatment, and Getting On With Your Life (58 page)
Where to Go for Help—Information and Support Groups
Autoimmune Diseases
American Autoimmune Related Diseases Association, Inc.
National Office
22100 Gratiot Ave.
Eastpointe, MI 48021
(586) 776-3900
(586) 776-3903 (fax)
(800) 598-4668
The NCAPG was founded and is facilitated by AARDA.
NCAPG members’ individual websites:
American Behcet’s Disease Association
American Vitiligo Research Foundation
APS Foundation of America
Arthritis Foundation
Celiac Disease Foundation
Celiac Support Association
Coalition for Pulmonary Fibrosis
Crohn’s and Colitis Foundation of America
Dysautonomia International
www.dysautonomiainternational.org/
Endometriosis Association
Gluten Intolerance Group
Graves’ Disease & Thyroid Foundation
Immune Deficiency Foundation
International Foundation for Autoimmune Arthritis
www.ifautoimmunearthritis.org/
International Pemphigus & Pemphigoid Foundation
Lupus Foundation of America
Lupus and Allied Diseases Association
Myasthenia Gravis Foundation of America
Myasthenia Gravis Foundation of Illinois
National Adrenal Diseases Foundation
National Alopecia Areata Foundation
National Foundation for Celiac Awareness
National Kidney Foundation
National Multiple Sclerosis Society
National Psoriasis Foundation
National Sleep Foundation
PANDAS Network.org
Pediatric Autoimmune Neuropsychiatric Disorders
Platelet Disorder Support Association
Relapsing Polychondritis Awareness and Support Foundation, Inc.
Scleroderma Foundation
Sjögren’s Syndrome Foundation
The Myositis Association
Transverse Myelitis Association
U.S. Pain Foundation, Inc.
Vasculitis Foundation
Vitiligo Support International
Johns Hopkins Autoimmune Disease Research Center
Ross Building, Room 659
School of Medicine, Pathology Department
720 Rutland Avenue
Baltimore, MD 21205
http://
autoimmune.pathology.jhmi.edu
Barbara Volcker Center for Women & Rheumatic Diseases
The Hospital for Special Surgery
535 East 70th Street
New York, NY 10021
(212) 606-1461 or (212) 774-2291
Fax: (212) 774-2374
www.hss.edu/
barbara-
volcker.asp
E-mail:
[email protected]
The Arthritis Center
Boston University Medical Center
72 East Concord Street, Evans 501
Boston, MA 02118
(617) 638-4312, Clinic (617) 638-7460
Fax: (617) 638-5226
NYU Center for Arthritis & Autoimmunity
NYU Langone Medical Center
333 East 38th Street, 4th Floor
New York, New York 10016
(646) 501-7400
http://
nyulangone.org/
locations/
center-
for-
arthritis-
autoimmunity
Rebecca MacDonald Centre for Arthritis and Autoimmune Disease
Mount Sinai Hospital
Joseph and Wolf Lebovic Health Complex
60 Murray Street, 2nd Floor (Main)
Toronto, Ontario, Canada M5T 3L9
Fax for appointments: (416) 586-8766
www.mountsinai.on.ca/
care/
rmcad/
National Alopecia Areata Foundation
714 “C” Street
San Rafael, CA
(415) 456-4644
APS Foundation of America, Inc.
American College of Rheumatology
60 Executive Park South, Suite 150
Atlanta, GA 30329
(800) 346-4753
Arthritis Foundation
1330 West Peachtree Street
Atlanta, GA 30309
(800) 283-700
National Institute of Arthritis and Musculoskeletal and Skin Diseases
National Center for Complementary and Integrative Health
American Celiac Society
Dietary Support Coalition
www.americanceliacsociety.org/
index.html
Celiac Disease Foundation
20350 Ventura Boulevard, Suite 240
Woodland Hills, CA 91364
(818) 716-1513
Fax: (818) 267-5577
Celiac Support Association
413 Ash Street
Seward, NE 68434
P.O. Box 31700
Omaha, NE 68131-0700
(402) 643-4101 or 877-CSA-4CSA (toll-free)
Fax: (402) 643-4108
E-mail:
[email protected]
Gluten Intolerance Group
31214 124th Avenue SE
Auburn, WA 98092
(253) 833-6655
Fax: (253) 833-6675
E-mail:
[email protected]
Celiac Society
Solve ME/CFS Initiative (formerly the CFIDS Association of America)
Solve ME/CFS Initiative
P.O. Box 36007
Los Angeles, CA 90036-0007
(704) 364-0016
E-mail:
[email protected]
Crohn’s & Colitis Foundation of America, Inc.
733 Third Avenue, Suite 510
New York, NY 10017
(800) 932-2423 or (212) 685-3440
National Institute of Diabetes and Digestive and Kidney Diseases
www.niddk.nih.gov/
health/
digest/
niddic.htm
United Ostomy Associations of America
P.O. Box 512
Northfield, MN 55057-0512
American Diabetes Association
1701 North Beauregard Street,
Alexandria, VA 22311
1-800-DIABETES (800-342-2383)
Juvenile Diabetes Research Foundation International
120 Wall Street
New York, NY 10005-4001
(800) 533-CURE or (212) 785-9500
Fax: (212) 785-9595
National Institute of Diabetes and Digestive and Kidney Diseases
National Institutes of Health
The Endometriosis Association
International Headquarters
8585 North 76th Place
Milwaukee, WI 53223
(800) 992-3636 or (414) 355-2200
Fax: (414) 355-6065
Fibromyalgia Alliance of America
P.O. Box 21988
Columbus, OH 43221-0988
www.php.com/
fibromyalgia-
alliance-
america-
fhaa
National Fibromyalgia Research Association, Inc.
P.O. Box 500
Salem, OR 97308
(503) 588-1411
Lupus Foundation of America
1300 Piccard Drive, Suite 200
Rockville, MD 20850
(800) 74-LUPUS or (800) 558-0121
S.L.E. Lupus Foundation
330 Seventh Avenue, Suite 1701
New York, NY 10001
(212) 685-4118
Fax: (212) 545-1843
E-mail:
[email protected]
Lupus and Allied Diseases Association, Inc.
P.O. Box 170
Verona, NY 13478
(866) 258-7874 (toll-free) or (315) 829-4272
Fax: (315) 829-4272
E-mail
[email protected]
LupusLine
®
Telephone counseling offered in coordination with S.L.E. Foundation, Inc. and The Hospital for Special Surgery, New York City.
(866) 375-1427 (toll-free)
https://
www.hss.edu/
LupusLine.asp
National Kidney Foundation, Inc.
30 East 33rd Street, New York, NY 10016
(800) 622-9010
American Academy of Allergy, Asthma & Immunology
E-mail:
[email protected]
National Multiple Sclerosis Society
(800) 344-4686
American Academy of Neurology
National Institute of Neurological Disorders and Stroke (NINDS)
Myasthenia Gravis Foundation of America
5841 Cedar Lake Road, Suite 204
Minneapolis, MN 55416
(800) 541-5454 or (952) 545-9438
Fax: (952) 545-6073
The Myositis Association
755 Cantrell Avenue, Suite C
Harrisonburg, VA 22801
(540) 433-7686
Fax: (540) 432-0206
International Pemphigus & Pemphigoid Foundation
Atrium Plaza, Suite 203
828 San Pablo Avenue
Albany, CA 94706
(510) 527-4970
Platelet Disorder Support Association
8751 Brecksville Road, Suite 150
Cleveland, OH 44141
1-87-PLATELET or (440) 746-9003 (toll-free)
Fax: (844) 270-1277
E-mail:
[email protected]
National Heart, Lung, and Blood Institute
Information Center
P.O. Box 30105
Bethesda, MD 20824
(301) 251-1222
National Psoriasis Foundation
6600 SW 92nd Avenue, Suite 300
Portland, OR 97223
(800) 723-9166 or (503) 244-7004
Fax: (503) 245-0626
Genetic and Rare Disease (GARD) Information Center
National Institutes of Health
http://
rarediseases.info.nih.gov
Scleroderma Foundation
300 Rosewood Drive, Suite 105
Danvers, MA 01923
(800) 722-HOPE (4673)
E-mail:
[email protected]
Scleroderma Family & DNA Repository
5431 Fannin Street, Suite 5.245
Houston, TX 77030
(713) 500-7196 Fax: (713) 500-0718
E-mail:
[email protected]
https://
med.uth.edu/
scleroderma-
registry/
International Scleroderma Network
www.sclero.org/
isn/
a-
to-
z.html
Sjögren’s Syndrome Foundation, Inc.
6707 Democracy Blvd, Suite 325
Bethesda, MD 20817
(800) 475-6473 (toll free) or (301) 530-4420
Info line: (800) 475-6473
Fax: (301) 530-4415
American Foundation of Thyroid Patients
P.O. Box 572472
Houston, TX 77257
E-mail:
[email protected]
http://
thyroidfoundation.cfsites.org/
American Thyroid Association
6066 Leesburg Pike, Suite 550
Falls Church, VA 22041
E-mail:
[email protected]
Vasculitis Foundation
P.O. Box 28660
Kansas City, MO 64188
(816) 436-8211 or (800) 277-9474
Fax: (816) 656-3838
Federal law requires that insurers planning to significantly increase plan premiums (by more than 10 percent) submit their rates to the federal government (or states) for review.
To find rate review information for your insurance plan, follow this link:
https://
ratereview.healthcare.gov/
Kaiser Family Foundation (KFF)
KFF is a nonprofit organization following healthcare trends. Its website offers a wealth of information, including an insurance marketplace rate calculator:
