Life on Wheels (66 page)

Read Life on Wheels Online

Authors: Gary Karp

Tags: #Health & Fitness, #Physical Impairments, #Juvenile Nonfiction, #Health & Daily Living, #Medical, #Physical Medicine & Rehabilitation, #Physiology, #Philosophy, #General

BOOK: Life on Wheels
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According to the University of Michigan’s Sandra Loyer, men have a greater challenge adjusting to a disabling injury to their wives. She says:

 

They’re afraid they’ll hurt her, that they have nothing to offer, whereas women are more naturally nurturing. Sure, there are more sensitive men these days, but it’s still harder for them.
Adjustments are possible. The following 40-year-old woman has C5 quadriplegia and has been married for 22 years. She became injured by a gunshot 18 years into her marriage.

 

We had a great sex life before my injury and we still do. My disability has never turned off my husband. We had the Big Sex Discussion while I was in rehab and had our first post-injury sex there, too. I assured him that he wasn’t going to “break” me or anything. One of his concerns was about doing something wicked to the catheter. So for us, aside from the physical changes, our sex life has remained the same. I have a theory why this is: We were very much in love and very close before this happened, and we still are.
Finding Partners

 

If you don’t currently have an intimate partner how do you get started?
Finding love is tough enough for anyone these days. Single Americans complain more and more about the difficulty of finding companionship, much less a mate. Personals ads and Internet dating sites abound, flooded with people on the hunt for a partner. Bringing a disability into these environments is hardly an advantage.
This 23-year-old man with an SCI struggles with finding a partner:

 

My hormones are raging, but I have no outlet. I go out a lot with friends, but even friends who were potential lovers before are now certainly just friends. I can’t seem to shake that “Wow, you are a great person” line. I know that in the long run I will end up with someone who is great, but I could really just go for a one-night stand or two! I’m a pretty good-looking guy, so the prospects are there, but what do I do!?
Likewise for this woman born with a disability:

 

I would like to be involved again, but I know that I can’t meet people sitting around the local bar, like many of my fellow college students. Frankly, I’m clueless.
Women have a greater challenge finding partners. The culture has historically promoted the idea of the male as aggressor. Women were supposed to wait for men to approach. This has changed somewhat, with women more able to make the approach, but some disabled women still find that men are less likely to approach a woman with a disability.
This woman born with spina bifida found that growing up with a disability had its challenges:

 

I felt really inadequate next to my female friends. I thought they were inherently more attractive simply because they didn’t use a wheelchair. I think I got around it by being more assertive. The stereotype of the woman waiting for the man to make the move didn’t work for me. If I was attracted to a man, I would make the first move.
9
According to the Baylor study,
9
women with disabilities reported their perceptions of the obstacles to dating:

 

Someone who is interested in me might not ask me out because of what others might say.
Many people do not ask me out because they assume I am unable to have sexual intercourse.
People seem surprised that I might be interested in sexual intimacy.
People I would like to date see me as a friend, not as a romantic partner.
Margaret Nosek elaborates on the cultural differences that women face:

 

The nurturing role is the role of the woman. So if the woman is the one who needs the help, they’re up a creek. There are very few male partners or male family members who are willing to make the sacrifices necessary to provide the kind of assistance needed by a woman with a significant disability. The man with a disability has many more resources than the woman. The man gets it because it is the traditional role of women.
When it comes to attracting partners, women in the study found themselves in a paradox: you can scare off potential partners by aggressive pursuit, but, if you don’t pursue partners, they’re gone.
The good news in the search for partners is that there are more singles on the market now. People are marrying later. Women have more options for a profession and independence than society once allowed. Life expectancy is much longer as medical advances preserve our health; making a commitment when you are still young can mean being together for quite a long time, so what’s the rush? With later marriages and the increased divorce rate, there are a lot of unattached folks out there looking for love.
You certainly won’t meet anyone by sitting at home. You can meet people through volunteer activities, political groups, clubs of all sorts, classes at the local college or community center, or professional organizations and trade shows. Centers for Independent Living sponsor activities, including social and educational events. Although the percentage of success is not high, people do find partners through personal ads and on the Internet. It’s worthwhile to say hello to someone interesting at the grocery store or movie theater. You never know. There are dating resources specifically for persons with disabilities (see the Appendix).
It is not unusual for couples to meet in hospitals or clinics. Therapists, nurses, volunteers, and other staff get a unique chance to know the person beyond the disability. Friendships form, and sometimes romance results. These can be equal and sincere meetings of people for whom the opportunity to see each other regularly allowed authentic intimacy to develop. Mitch Tepper notes:

 

These people are professionals with less fear of disability, so some are capable of forming authentic relationships.
3
At the same time, these relationships have no guarantee of success. Says Tepper:

 

Some people also need to control or take care of someone. That might be why they’re in the health profession in the first place.
3
Its just reality: there are extra challenges when you have a disability. In
Enabling Romance
, a 36-year-old man used a personal ad to seek a partner. He was open about his disability and received no response, and then:

 

As an experiment I placed an ad in a magazine without mentioning I was disabled. I received three responses. I was so thrilled! But then, when I replied to their letters and explained that I was in a wheelchair, I never heard from any of them again.
6
This is really the only approach—be honest. It can work to first discuss other areas of interest, but don’t wait too long to identify your disability. Allowing the connection to go deep before you reveal your disability is risky and can be taken as a violation of trust. Then, if the other person is unable to accept you, it is best to move on with no regrets, possibly having made a friend in the process. Yes, it can be painful and disappointing, but try to remember that you’re looking for a partner with the ability to see and respect you on a deeper level than your disability.
Women can have a more difficult time finding a male partner. There is more social pressure on women to fit the supermodel image; men tend to be more attached to the public image of having a beautiful woman on their arm. Margaret Nosek doesn’t think that media images make people with disabilities aspire to fit those images so much as they lead others not to consider a person with a disability as a potential partner:

 

I think that the media have a more damaging effect on the general public than women with disabilities. I think it’s very similar for men and women.
1
Trading Signals

 

Humans give out certain cues to attract a mate: a deeply ingrained, evolutionary system of physical signals. In
The Anatomy of Love
, Dr. Helen Fisher writes that:

 

Men tend to pitch and roll their shoulders, stretch, stand tall, and shift from foot to foot in a swaying motion. Some women have a characteristic walk when courting; they arch their backs, thrust out their bosoms, sway their hips, and strut.
10
These signals are hard to give while sitting down, so a person on wheels can be at some disadvantage. They must exaggerate their body language and use other signs to transmit the message of interest to someone they might see at a party, a museum, a restaurant, and so on. According to Fisher, the ensuing stages include getting close enough to begin a simple conversation, achieving those first subtle touches of a forearm or shoulder, and getting into a body synchrony, in which two people begin to mirror each other’s movements and posture. You will need to find other ways to overcome your physical limits. For instance, eye contact is very powerful and gets the message across just fine.
The impact of your sitting in a wheelchair is undeniably powerful, and you might find yourself drawn to circumvent its effect as did this quadriplegic woman in her early 20s:

 

I will transfer out of the chair just to break the contact to make it easier for other people to approach me.
11
In some cases, the message that a wheelchair sends—that the person in it has a physical limitation—can be welcome. A man who uses a chair because of his difficulty walking found that his awkward gait had been an obstacle to meeting potential partners:

 

I never get the girl if she sees me walking. But if we meet where we’re sitting and she gets to know me first, then she realizes I’m a nice guy and it doesn’t matter to her if I walk weird.
If you doubt someone showing signals of attraction could be interested in someone who uses a wheelchair, you might miss important cues. Be open to signals, while taking care not to mistake friendly signs for more than they are. Go gently, and allow things to take their course. Respond subtly, and if a relationship is meant to proceed, it will.

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