Authors: Ellen Hopkins
first—lateral passage;
or to some courageous soul,
willing to cede all control
over
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personal safety and collapse
backward into the arms
of strangers in a slow-motion,
up-and-down leap of faith.
Marissa
FAITH
Whatever small measure of faith
I once owned was lost years ago,
buried beneath a monstrous heap
of self-pity. I can’t believe it took finding out about my husband’s
long-term love affair to yank me
out from under the morass. Time
to disengage inertia, create forward movement. I’m just not exactly
sure how to start, or what I want
to move toward. Entrepreneurship,
I think. Can’t imagine going to work for someone else, punching a time
clock, being told what to do. Not
now that I have fewer shackles.
Or at least they’re a lot looser.
Christian hired Pamela to come in
twice a week. Two consecutive days
out of every seven, allowing me
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a measure of freedom I’d forgotten
even existed. Christian also took
Shane to get his driver’s license,
and once he passed the test, bought him a decent used car. Scary,
to think about Shane driving.
I made a deal with him—we’ll
pay for his insurance as long
as he promises not to drive under
the influence. Ever. His response
was typical Shane.
Jeez, Mom,
do you think I’m a total stoner?
Call me Mister Lightweight.
Wonder what he considers
a heavyweight. Anyway, he gave
me his word. At this point, I trust him more than I do his father.
Regardless, I will not ask Christian to leave, at least not right now.
The weekend was not the romantic
getaway he’d hoped for, but neither was it a complete failure. We talked, an accomplishment in itself, though 772/881
difficult. It was like someone pulled back a big rock to let the truth,
all ugly and fanged, slither out
from underneath it. It coiled there between us, hissing and rattling,
until it finally exhausted itself.
WHEN CHRISTIAN GOT HOME
He hit the ground running, of course.
He’s halfway to St. Louis by now.
And yes, Skye is with him. The thing is, even if I asked Christian to transfer her to one of their other offices, he’d end up in that city eventually. Do I want her fired? Not really. Work
may have hooked them up in the first place, but at this point, if they want to be together, they will be. If I ever discover that has happened, there
will not be another chance. Christian requested the damning cell phone back, and I gave it to him, but not before emailing a copy of those photo files to myself, for two reasons. One, in case I need them to back up a demand for alimony. And two, I’m kind of
thinking if Pamela proves dependable, I’d like to go to some of those very same places. Greece? Yeah, it’s been 774/881
on my list for years. And Costa Rica.
And New Zealand. World travel is on my to-do list. With or without Christian.
BUT IT’S BACK TO ROUTINE
For me at the moment. Afternoon
CPT coming right up for Shelby.
Before I can exit the kitchen,
Mom comes in, carrying an armful
of packages.
Look what I got for
your sister’s birthday. She opens
a Macy’s bag, extracts an oversized red leather purse. Sooo not Andrea. Must have been on sale. “Really nice, Mom.
Did you talk to Andrea about dinner?”
I tried. She seemed awfully tentative
about her plans for Friday night.
Something going on with her, I think.
But whatever it is, she’s not talking.
“New man, maybe. She tends to stay
pretty close-lipped about them
anyway. Burned once too often.” I tell Mom the short version of the Robin
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story, omitting the sex-on-the-beach scene. I mean, Andrea
is
her daughter.
IT IS KIND OF NICE
Having her stay here for a while.
After living in such a tiny space
for so long, she definitely knows
how not to be intrusive, while
still being available. She hasn’t
pushed me to discuss Christian
or our weekend or any decision
I might have come to. But she’s
here for me, if I want to talk.
I’m not much more forthcoming
than my sister is. We are our
mother’s daughters, after all.
Maybe one day, when our kids
are having partner problems,
Andrea and I will open the flood-
gates, spill stories in an effort
to give our children our best shot
of advice. Meanwhile, however,
“It’s time for Shelby’s CPT. Why
don’t you give Andrea another call?
If we’re doing dinner and a movie,
I need to make sure Pamela is available.” 778/881
The movie was Harley’s idea.
Chick
flick bonding,
she called it. I can’t believe she started high school.
When was the last time I even saw
her? Two years ago? Three? She is
on my mind all the way to Shelby’s
room. “Dark in here, Shelbs. Close
your eyes for a minute so Mommy
can open the blinds.” I closed them to keep the early afternoon sun at bay.
This time of year, it angles in harshly until around three p.m. “There. That’s better. Now I can see my girl.” I turn from the window, toward the bed.
And I don’t like what I see at all.
Shelby could camouflage with
the sheets, her skin is so pale. I yank back the covers. The rise-fall
of her chest is shallow, though she doesn’t sound anymore congested
than usual. “How ya feeling, little fortune cookie?” Shelby manages
a tiny smile and a weak
Goo …,
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but when I roll her whisper-frail
body, it offers no resistance. Routine finished, I go straight for the phone.
WHAT I WANT TO HEAR
From Dr. Malik is a dismissal
of my concerns. But as Shelby’s regular doctor, he knows her almost as well as I do.
Take her to emergency at
St. Mary’s. I’ll meet you there in forty
minutes. Better to err on the safe side.
Apprehension begins a noticeable
gnaw in my stomach. I enlist Mom
to help me swaddle Shelby in a light cotton blanket, carry her straight to the van, and strap her in. “Will you come with me? Please?” I try hard
to keep my voice from betraying any hint of fear, for Shelby’s sake. But Mom knows I’m scared.
Of course, honey.
In less than fifteen minutes, we pull into the ER parking lot. Mom goes for help, returns almost immediately with a young orderly, tugging a gurney.
I’m
Gordon. Dr. Malik let us know you were
coming. Let’s get Miss Shelby inside.
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Gordon lifts her gently, as he might an antique porcelain doll. His voice remains calm, his manner relaxed.
Struggling to stay likewise,
I walk beside the gurney, holding
Shelby’s hand. “Dr. Malik misses
you, Shelster. He asked if we could drop in and say hi. You don’t mind, do you?” In answer, her fingers wiggle against mine, the closest thing to
a squeeze she can manage. Inside,
bleach and alcohol flavor the air
so heavily I want to gag. We’ve been here before. Many times. But there
is something new this time—some
ridiculous lick of panic, lifting goose bumps all over my body. Together,
Gordon and I wheel Shelby into
an exam room.
I’ll let Dr. Malik
know you’re here. Gordon gives
my shoulder a reassuring pat.
When the doctor arrives, he asks me 782/881
to step outside while he and a nurse do an assessment. I join Mom in
a nearby waiting area, where an aged TV is showing a blurry
Friends rerun.
We sit, half watching. And we wait.
I CHANT A SILENT MANTRA
Everything’s fine. Everything’s fine.
Everything’s fine. But when Dr. Malik appears at last, his expression shouts,
Everything’s not fine. Everything’s not fine.
At his approach, I stand, but when
he reaches me, he sits and indicates I should too.
Mrs. Trask, I’m afraid
the news isn’t good. He clears his throat.
You know SMA is a debilitating
neurological disease, one that leads
to muscles wasting away. Once we
believed it only affected the skeletal
muscles, but recent research shows
it can also affect the heart muscle.
I’ve ordered more tests, but I believe
this is what has happened to Shelby.
His words sink through the low buzz inside my brain. “Her heart isn’t
working like it should. But what
does that mean? Is there a machine …?” But I know the answer. No machine.
No drug. No treatment. At age four, 784/881
Shelby’s heart is all used up. As summer dies, so does my beautiful angel.
AS SUMMER DIES
June promises wither, fuel
October passion,
a sensuous mingling
inconceivable
in spring—tangles of auburn,
sienna, and honey gold.
Fall’s arrival surprises
the valley, and it reverberates
with hurried
preparation.
Cacophonous instruments—
chain saws, chippers, shredders,
and mowers—play
a dirge for September, ready
her remains
for the funerary fire.
A strike of the match,
and the pyre bursts color,
auburn, sienna, and honey
gold, threaded blue beneath
a sheer shroud
of morning. Autumn hovers,
incense, masks the scent
of early winter. Settles in
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like sea-heavy fog,
blankets the corpse of summer.
Andrea
OFFICIALLY, SUMMER
Still has three weeks to go. But our usual stifling Labor Day is a temperate seventy-five this year. Autumn, come to call early. What that means as far as winter is anyone’s guess.
And officially, I am thirty-seven today.
But when maintaining a death vigil, birthdays don’t seem very important except as reference points. I have
already celebrated many more
birthdays than Shelby ever will.
The strangest thing is, though we
always knew this time would come,
no one expected it. When Mom
called to let me know, I felt like
a freight train had just jumped
track and landed in my living
room, engine still screaming and
belching diesel. The doctor gave
Shelby maybe a week, sent her home
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to hospice care. Her little heart
is tired, her hummingbird body
flimsy as cellophane, her colorless skin almost as transparent.
Yet she wears a perpetual smile,
as if she looks forward to leaving
us. The hospice worker is a stout
woman named Stella. She comes
once a day, but there isn’t much
need. Mom and I are here to help
Marissa with whatever she needs.
She only leaves Shelby’s bedside
to use the bathroom, or when Chris
manages to talk her into stretching her legs. He flew straight home from wherever he was when he got
the news and seems as devoted
as Marissa is to Shelby’s comfort.
It’s touching, really, especially
when he sings to her, and that
is often. At the moment, he is